Patients with rare cancers are being left to die because of a postcode lottery that decides who gets access to drugs, according to research from a cancer charity.
There are wide variations across England in the number of patients granted access to medicines, a study from the Rarer Cancers Forum found.
The charity used the Freedom of Information Act to gain full information from 62 of England’s 152 primary care trusts (PCTs).
It revealed that 100% of applications from patients were rejected in some areas of the country while in other areas every single one was approved.
A total of 96% of patients living in Mid Essex had their requests approved, while every one in neighbouring South West Essex had theirs rejected.
Overall, one in four exceptional requests for cancer treatment were denied - about 1,314 patients in total.
“The NHS should be available to all who need it,” said the charity’s chief executive, Penny Wilson-Webb.
Thousands of cancer patients had been forced to plead for their lives since October 2006, the time covered by the survey, she pointed out.
“There has to be a better way,” she added. “We urge the Government to accept our 10 point plan to end this bizarre and demeaning lottery.”
According to the Forum, between 30% and 50% of all cancer cases could be classified as “rarer”, falling outside the common cancers such as colon, breast, lung and prostate. A cancer may be classed as “rarer” either because it affects an unusual site in the body, or because the cancer itself is of an unusual type, is difficult to diagnose, or requires special treatment.
This latest report comes after last week’s rejection by the National Institute for Clinical Excellence of four drugs last that treat advanced kidney cancer.
The Department of Health insists that funding for treatments “should not be withheld solely because Nice guidance is not available, but that decisions should be made on the basis of the available evidence”.
source : uk.news.yahoo.com